Yesterday

Was another bad bad day. Got up early then feel asleep on the couch. Not a good thing. Had missed my meds, and dehydrated as well. No coffee meant caffine headache to go along with all the other issues. Cramping was at a minimal but still was feeling so miserable. Woke up bout 9 or so and son got me a Gator aid, and I went thru bout 3 bottles of water in bout 2 hours. Glad it was sunday and not much going on. Felt bad because had to have the baseball coach pick up son for little league game. First one I have missed in months. Later on in the afternoon I started feeling better. I was actually almost glad the cramps and urge to pee come back. Today I"m hoping to get my hearing aids. And sometime today wife has to take forms back to where I used to work to get on cobra. Yes there maybe a lot of things Obama may not be right with. But fixing the Cobra plan was a life savcer for me and prob many many others. Without his bill I would not be able to get cobra without paying back premiums at full price. . Now with this new bill we can get it with out the back payments and at only 160 a month. Being on fixed income now that is hard but not unreachable as 500 was. Still doing research on Crohns. Seems as if everyday there is something new about it. I know lately i have been talking lot bout this thing that has affected me but it does take my attetion. And why not ? I went it has ruined me financially and physically as well. We went from 70 thousand a year with insurance to 12 a year and no insurence in a matter of months. We fell behind in house payments and in rush to get it refinanced and save it we got hoodwinked. So long story short is 2 weeks before Christmas we moved. Had too. But house we are renting is nice and on a lake. So some good has come from this. When I"m feeling up to it I love to set out on my back sun porch and just look out over the lake. Its not a big fancy lake with all the boats and stuff, matter of fact they dont' allow gasoline engines in it. Only electric trolling moters which makes it nice an peacefull.
KK nuff rambling for now. maybe be back later if I get my hearing aids or good news.

Bad day

Yeah, with Crohns you have good days and bad days. Just like anyone else at any other time.
A bad day with this diesease is during a flare-up. Cramps...bad painful cramps, with sometimes
nothing coming out. 8 or more trips to the bathroom pot. Your bum bills like raw hamburger at
times from the moisture and from wiping so much. I on the other hand am semi lucky. I have
what is called an Iliotomy. That is a bag attached to my abdominin where my bile goes now. This
was done the 3rd or 4rth day of my first hospitol stay to alleviate the pain and so my bum could
heal from the 2 other surgeries that were done. In layman terms the lower part of my poop shoot don't really work. I only have seepage from there because it still generaltes its own stuff
in your intestines and it has to go somewhere. I have no control there either. So this being my first real flare up it does have me we bit concerned but thru research I have come to expect certain things. My seepage will have blood in it. Maybe a little more then usual because I am also on comindine for a blood clot I so gracously aquired my last hopitol visit. The cumidin is like a blood thinner. It takes the capablilty for your blood to clot away and you have to be careful not to bruise yourself.
The Iliostomy bag is good for me at the moment because it minimizes anything going thru my painful bum. Still a bad day involved being real tired and feeling down. I have slept from bout 10 am till bout 2 pm in afternoon. Thats not normal for me. The steriods they have me on is rough. Swelling terribily so the heat don't help. Ok..was just told have to go out for errand..pick up more supplies for my iliostomy. I'll add more later.

First Blog

Ok, little bout me as just starting this. As you can see from the tittle this is my first blog. I'm 53 now with 5 kids. Most of them are grown. In May, after being bread winner and worker for years, I got sick. I mean scary sick. On 23rd of May I was admitted to Cleveland Clinic of South
Florida in excruciating pain. Within a week I had undergone 3 surgeries. Spent the month of June in hospitol bed. Long road and story short I was finally dx'ed with Crohns Disease. Not going to explain it right now but its not good. I haven't worked since May and the place I worked
at terminated me in November. Right or wrong of that maybe in another rambling. My insurance was cut off last day of December. Now what happens? They offer Cobra but for those
of us that know and faced with the choice, how can we afford those premiums. The new bill says it will take 60 percent and thats great but what bout us the just lost it?? I get have LTD insurance from where I worked but it only enough to pay for rent <> and the electric bill. I sujppose I may have to become a corporation to get a bailout?
Just being an ole country boy raised in the 70's I feel we have been let down. As long as the sun is shining all is well. And dont' come to me and speak about bad things. Everything is looking up and good. I'm sorry but that how our government, local and up higher even, wants to feel and wants us to be. When forced as now to see the economic slide we are in they are doing a knee jerk reaction. Which means somethings they do may work some may not but bottom line is those that feel thru the loops stays thru the loops with no assistance. Nothing more then " I'm sorry we can't help you" which translates to "sucks to be you" in my opinion. Right now I"m looking for trees to shake and toes to try to stomp on. There are to many people out there like me, with nothing to help us. Lot of us not asking for help because we dont' know who to ask or even what questions to ask. Sure we can push for bills and laws and stuff but when your cramping your guts out and in so much pain, then watching your family trying to make you comfortable and not knowing what to do ..well that Bill that they got setting on the corner of some politicians desk would be used better to wipe with. There needs to be something or some group in place to make immediate ammends or offer help. Why not ?? Hmmm because maybe we need to be pushed under the rug as our moneys go to the 'needy over sea's' in a place most of use will never see or even think of. Its not just about me or Crohns or UD. Not a single one diesease but its home. They say its the Christian or proper way to help those in need. We'll i'm sorry but that don't count if you ignore and not do anything for yours at home. Home and family should always come first. Even in the eyes of God.
Maybe more venting later. Maybe I won't ramble so much..but hey tis Ramblings :)